二儿子得怪病 夫妻俩求救助
陈佳塔的两个儿子同时患上了“肾上腺脑退白质化症”，视觉、听觉逐渐丧失，说话和行走能力也丧失。目前，医疗界上尚无有效治疗方法，据悉在台湾有一种可以控制病情的食用油，为得到这种油，陈佳塔不懈努力，苦苦寻求……
Both sons of Chen Jiata suffered the disease named ALD/AMN (Adrenoleukodystrophy) and their vision and hearing gradually lost as well as the language and action ability. So far, there is no special effective treatment which can cure the disease. But it is reported that there is a special kind of oil which can control the disease in Taiwan. In order to acquire this oil, Chen Jiata takes no spare effort to search for it …
陈佳塔生活在海城，经营一间影像工作室，原本有两个活泼可受的儿子，过着幸福美满的生活。然而好景不长，一年前，当时年仅9岁，就读小学一年级的大儿子陈立光有时会做出一些莫名其妙的举动，走路时东倒西歪，有时还会碰壁、跌倒，学习写字时双手老是不听使唤，写起字来歪歪斜斜。
Chen lives in Haifeng County and owns a small video workshop himself, leading a happy life with two lovely sons. Unluckily, one year ago, Chen’s elder son Chen Liguang who is grade one of primary school sometimes acted indescribably, including walking unsteadily, running his head against the wall or stumbling suddenly meanwhile his hands are out of control and continues shaking when writing.
由于平时工作忙，当初陈佳塔对儿子的反常举动并不太在意，开始以为是大儿子陈立光眼睛斜视，就带着他到广州中山眼科医院配了一双矫视眼镜。
Due to his busy business, Chen Jiata at the beginning didn’t notice and paid enough attention to the abnormal act of his son. He just took it for granted that it resulted from the eye strabismus. And he brought his son to Sun Yat-sen ophthalmology hospital of Guangzhou and prepared him a pair of spectacles which cure eye strabismus.
但是，陈立光跌倒摔跤的印象越来越严重。陈佳塔开始意识到问题的严重性。屋漏偏遇连夜雨，正当陈佳塔为大儿子的情况发愁时，年仅5岁的二儿子陈立文也经常会莫名其妙的狂叫，而且反应越来越迟钝，眼睛逐渐看不清东西，慢慢失去视觉功能，陈佳塔感到事情不再是想象中那么简单了，心头一紧，心想一刻也不能耽搁，就赶紧带着两个儿子到广州、深圳等地各大医院求医。
However, the phenomenon of his son’s falling down occurred more frequently and even severely. Chen Jiata began to notice the gravity of his son’s situation. Misfortune never comes alone. When Chen Jiata was worried about the illness of his elder son, his second son aged five also appeared the disease’s symptoms of screaming suddenly, reacting slowly and gradually losing his vision. Chen Tajia was aware that the severity of the illness was not as simple as he thought and can’t be delayed any longer so that he determined to bring his two sons to the famous hospitals in Guangzhou and Shenzhen.
陈佳塔没有想到厄运就这样降临在自己家里。经过各大医院医生的综合仔细诊断显示，二个儿子同时患上了世界上罕见的脑神经疾病——肾上腺脑白质退化症。医生们告诉他，这种疾病主要是母亲携带隐性基因遗传给儿子，一旦母体有此基因，所生的男孩中有一半机率会得此症。病患体内由于缺乏分解“长链饱和脂肪酸”的酵素，以致血液中脂肪过高，堆积在身体各处器官，尤其是大脑白质和肾上腺皮质，所以导致肾上腺机能与神经传导功能丧失。
Chen Jiata had never imagined that his family would be doomed to suffer this strange disease. And the diagnoses of several famous hospitals all showed that both of these two boys suffered the disease named Adrenoleukodystrophy(ALD/AMN) which is a rare cranial nerve disease in the world. The doctors told him that the disease is mainly caused by the hidden genes which are carried by their mother and pass down to their sons. In case the matrix possesses the genes, their sons will have 50% chances to suffer the disease. The patient lacks the enzyme which decomposes the Long chain saturated fatty acid so that the blood fat is too high and accumulates in the organs throughout the body, especially in the Cerebra White Matter and Adrenal Cortex, which results in the loss of Adrenal gland function and nerve conduction.
据了解，“肾上腺脑白质退化症”多数儿童在3至5岁发病，视觉听觉和知觉逐渐退化，直至各种功完全丧失，进入植物人状态，病童通常于1至10岁死亡。
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